Supporting the CABA project – Facilitating benefits for children and families affected by HIV
In order to provide a special focus to children affected
by HIV , the National Scheme For Community – Based Coordinated Protection,
Care and Support Services for Children Affected By HIV/AIDS (CABA) was
piloted in 10 “A” Category Districts.This
is a joint initiative of the National AIDS
Control Organization (NACO) and Ministry of Women
and Child Development (MWCD). At the district level CABA is managed by DAPCU
and District Lead Action Agency (DLAA, usually an NGO). This note provides
a broad description of the project and achievement of two districts in AP
with regard to the scheme. DAPCU teams
understand the efforts that can be made for children and their families
infected or affected and take similar steps in their districts involving
the NGOs and district administration.
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India has the third largest number of people in the world living
with HIV/AIDS, and based on HIV Sentinel Surveillance 2008-09, it is estimated
that India has an adult prevalence of 0.31 percent with 23.9 lakh people
infected with HIV, of which, 39 percent are women and 3.5 percent are children.
79,719 children living with HIV/AIDS are registered and 22,837 children are on
antiretroviral therapy (NACO –Annual Report 2010-11).
Children
from families affected by HIV require a special focus as often the burden of
care falls on them leading them to drop out of school and take up work. The
National Scheme for Community – Based Coordinated Protection, Care and Support
Services for Children Affected by HIV/AIDS (CABA) was designed to address the
needs of these children.
The scheme was
piloted in 10 A category districts of the country. The purpose of this scheme
has been to ensure “access to the different services by Children”
affected by HIV/AIDS (CABA) through “coordination and establishment of linkages”
with various existing service providers at all levels within Government and
Non-Government sectors.
Table 1 – CABA Details
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East Godavari
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Krishna
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Number of Children Living with HIV
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1,111
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1359
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Number of Affected Children
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12,312
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5829
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Total number of Children
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13423
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7188
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Number of Single Orphan Children
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5,679
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2723
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Number of Double Orphan Children
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1200
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887
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In Andhra
Pradesh, the scheme was piloted in East Godavari and Krishna Districts as part
of the national project. Both districts have been able to meet 80% of the needs
for support identified among CABA families as well as orient and sensitize a
large number of stakeholders and frontline workers from line department. These
districts were allocated staff through the District Lead Action Agency - 1 Project
Coordinator and 1 Mainstreaming and Training Officer. This staff were placed in
the DAPCU office in these districts and expected to undertake the following
major activities in coordination with DAPCUs– (a) Conduct District Situation
Assessment, (b) developing prioritization plan and baseline data, (c)
Coordinate with allied departments for trainings and mainstreaming activities
as well as (d) Conduct District Coordination Meetings.
The situational analysis
of the two districts provided the following information about the number of
children affected by CABA and the extent of their vulnerability (Table 1). The health,
psychosocial, educational and social protection needs of the affected children
and their families were periodically assessed in these districts. Active
efforts by the CABA team and DAPCU teams ensured that a majority of support
required by families and children infected and affected by HIV were catered to
through government services, social benefit schemes as well as private
donations and sponsorships. In over 17,000 instances families /children
were linked to services required by them. The details regarding needs
identified vs. linkages made are provided in the Table 2
Table 2- Linking CABA to Services
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East Godavari
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Krishna
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Name of Key Services
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No. of unmet needs identified with respect to the
specific services.
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No of Children/families linked to schemes
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No. of unmet needs identified with respect to the
specific services.
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No of Children/families linked to schemes
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Health/medical
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8301
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6879
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5373
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Nutrition
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2364
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7604
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1172
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1366
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Psychosocial
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7024
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2958
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429
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374
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Education
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12637
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9046
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148
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40
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Social Protection
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13922
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9828
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590
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345
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Alternative Care
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1226
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192
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193
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118
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Legal Redressal
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3
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3
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24
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7
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As discussed
above mainstreaming has been an integral part of the CABA activities and the
project aimed to orient all stakeholders on HIV and sensitize them to the needs
of CABA. To ensure a larger coverage many sensitization programmes were
undertaken in a cascade model with centralized Training of Trainers for select
representatives who then conducted similar trainings for their peers and
subordinates in their respective departments. Over 35,000 stakeholders were
sensitized across these two districts.
SL.No
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Table 3 – Details of Mainstreaming Achievements
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Name of the Unit
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Name of the department
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No of staff oriented
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East Godavari
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Krishna
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1
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ASHA
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Health /NRHM
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3860
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2100
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ANM
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1475
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1760
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MO PHC
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162
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151
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2
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AWW
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ICDS
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3978
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1431
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AWW(Supervisors)
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137
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110
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CDPOs
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21
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20
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3
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CWC members
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ICPS
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5
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7
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ICPS Staff
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8
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8
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4
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Teachers &Principals
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Education
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15,512
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2509
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MEOs
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60
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45
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5
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Counsellors-ART,ICTC,PPTCT
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DAPCU/SACS
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119
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55
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CCC+BSY+ORWs
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207
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33
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6
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District Level Officers
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All Departments
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90
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83
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7
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Police
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Police Dept.
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263
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105
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8
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Mandala Samakya Members
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DRDA/IKP
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120
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74
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9
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DPMOs & APMOs
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NLEP
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75
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60
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10
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Bank managers (SBI & Andhra)
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Various Banks
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20
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22
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11
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H.CRPs
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MEPMA
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280
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74
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What was the role played by DAPCUs in the successes of these CABA
projects?
Coordination with District Administration:
The DAPCUs in both districts work in close coordination with the district
administration. This familiarity could be leveraged by the CABA project for
smooth rolling out of their activities and objectives, especially with respect
to mainstreaming activities and social benefit schemes. The identified needs
and list of beneficiaries requiring support were presented through the DAPCU to
different departments like WCD, BC&SC Corporation, District Rural
Development Authority (DRDA), Mission for
Elimination of Poverty in Municipal Areas (MEPMA)
Education Dept.) etc. Additionally the District Coordination Meetings were also
convened through the active engagement of DAPCUs.
Identifying local resources: The
DAPCUs were also instrumental in supporting the CABA team in identifying local
resources and private donations. For instance in East Godavari through the
persistent efforts of the DAPCU the then District officer’s welfare association
members sponsored 128 children for education, nutrition and health needs.
Supervision and Mentoring of the CABA team:
The CABA team was routinely working in coordination with the DAPCU and like
other facilities under NACP, the CABA project was also supervised, monitored
and reviewed by the DAPCU team.
Even in
districts where there is no CABA project, the DAPCU teams adopt similar
strategies for mainstreaming and leveraging resources at the district to make,
social benefit schemes of govt. and non-govt. agencies available to families
infected or affected with HIV/AIDS. The district level networks also play a
crucial role in identifying the families and children and linking them to
services through DAPCU facilitation.
For
further information on the above experiences Mr Adilingam, DPM East Godavari (9177103177,
egddpm@gmail.com)
and Mr Kiran Panditi, DPM Krishna (9177103186, krisdpm@gmail.com)
may be contacted. Other DAPCU teams are encouraged to share their experiences
on facilitating social benefit schemes for PLHIV and HRGs by developing their
case studies and sending it to dapcunaco@gmail.com.
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